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UK-based Project Researcher: Research into support for working age people in the early stages of sight degeneration

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This project is expected to last 12 months, and will require a UK-based researcher, due to the nature of the work and various meetings which will need to be attended. Please read the details below for further information.


Research into support for working age people in the UK in the early stages of sight degeneration.


The research will investigate the employment challenges and prospects faced by people of working age in the UK who are living with degenerative sight loss because of an inherited retinal dystrophy.

Research objectives

• To understand individual experiences of living with a degenerative eye condition, specifically regarding employment and to identify the barriers and challenges.

• To identify strategies and solutions to overcome the barriers and inform the development of relevant support services.

Design and budget

The research will be conducted in three main stages over a period of twelve months.

1. Quantitative research with focus groups and online surveys, to be discussed at the working group committee, for which 25 days of research have been budgeted at a cost of £350 per day, totalling £8,750.

2. Develop ideas for sustainable resources or alternatively identify current resources and map them across the challenges and barriers identified, for which five days of research have been budgeted at a cost of £350 per day, totalling £1,750.

3. Test and develop the draft resources with the participant group, for which a budget will be calculated based on the output from stage two.


The outcomes should lead to service provision which improves the quality of the interview / employment experience and offers pathways to real help, support, advice, opportunities and equality. Outcomes should be meaningful, significant and make a real and valuable difference to people’s lives.

If you are interested, please respond with a pitch document outlining relevant past work and experience and an outline of how you would undertake this project.

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